so, Jake has officially failed his hearing test at school twice now!!!! We had an extensive test down about a year and a half ago where they had to put him to sleep and they monitored his brain waves for 4 hours.......it showed that he show some signs of less hearing in one ear - but not enough for a hearing aid......however, since he has failed both of the hearing test at school....
The nurse at school has recommended he be tested by the district audiologist - which I will do - it's a more extensive test. I will however, consult my pediatrician before going back to TCH for the test that requires a sleep agent.
Just when I think we are on track - bam - here is something else.....please know that I'm not complaining - I've had my share of trials with Jake....I just get comfortable that he is on the safe track and then I get a blast of reality. Let me explain - Jake is a little boy who was 3 months premature - weighing in at one pound....he has seen his share of doctors and hospitals.....he is a miracle - pure and simple! God has answers our prayers everytime and I know this is just another speed bump to cross. What I mean when I say a blast of reality is that Jake doesn't show his disabilities on the outside - so when you see him - you don't even know that he has them - sometimes I get caught up in the "normalacy of Jake" and I get sidetracked by him doing so well and then something will show up and I'll be like - oh yeah.....this is a struggle for him. Now that they have told me that he has failed his hearing test - I realize that he has mentioned a couple of times that he "can't hear" - can I turn the music up......or can I talk louder.....maybe it's all that drumming he does!!! LOL......
Jake is my hero - he doesn't even realize he has issues - he could care less if someone thinks he can't do something because he is going to prove that he can! I know that even if it's time for a hearing aid or some kind of implant - he will overcome whatever is placed in front of him. He already knows that God has brought him this far - he will tell you real quick that he was very tiny when he was born and Jesus healed him.....so, I'm not worried - I'm just "motherly" frustrated!
Please keep us (as well as my nephew Timo who is also struggling with his own hearing loss issues)in your prayers! Everything works out according to his plan for our lives - I believe that and I know that Jake was born into this world for a reason and a purpose and no matter what is thrown in our direction - we will overcome because greater is he that is in us than he that is in the world!!
I will keep you all posted!
Love to you all.
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4 comments:
Ok and you've just given Grammy somthing to chime in about! lol She's going to say the boys are like her! rofl
Let's all just go and learn sign language. Like you said you'll get thru it one way or another....
Tell him to chill out on those drums! ha Really I love his determination.
your right - Grammy will have a field day with this......
I think Jake has selective hearing...only hears what he wants!!! LOL
Okay you two lay off Grammy........It is horrible not to be able to hear. I guess mine is just old age. LOL I can not hear at all out of my right ear, but I haven't seen about it so I shouldn't complain. I keep thinking I will go to an ENT and see if a hearing aid would help me but only if it is tiny, tiny or maybe an implant. I don't worry about me but I do want my babies to hear and be okay. Yes our little Jake is a REAL MIRACLE.....Karen, you should post some before and now pictures on here. He is definetly one of a kind and so AWESOME.....I love him so much. His loud drums probably doesn't help him any, maybe he needs to wear earplugs and then you guys for sure would have to wear them. I do hope Timo can get total hearing in his ear. I know this is all so frustrating to him and Thank God he is so much better but still needs lots of prayer.
love you,
Grammy
tell Jake that he and Timo can visit Dr. 'Ross' Tonini together at TCH and swap hearing aids if they need to. Timo had the ABR as well, but due to age they didn't put him to sleep what an ordeal! Praying for him and for you!
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