well, we survived Jake's first day with the Clinical Neurophyc testing......got there at 9:00 and we are home at 4:00.......it went great during the morning session - but by lunch - he was OVER it. We took a break at 10:00 for a snack - then lunch at 11:40 - 12:15 and then he was so done.....but he persevered
the testing is intense for a 6 year old. Nothing painful - just continuous work and Jake has such a hard time staying in his chair and focusing (unless you have a drum set or a guitar - then he will focus on you for HOURS!). I could hear them in the room - she was extremely patient with him - ask him all the right questions and I kept hearing her say "great job Jake". However, with every question came the drumming on the table.....and, of course, a song to go with it. I was cracking up! She handled it very well - after about 4 hours of it - I was ready to pull my hair out and hang myself with it. I guess because I've never been in a classroom setting with Jake - I never realized what he does during the day - but, it is definitely annoying - no wonder the teacher kept telling me that the "Jonas brothers' have to stay home with me.......for those who don't know- they are a teenage band who - I assume - must have went to school with Jake and they must have had concerts during school....LOL.....so, every morning - I would have to tell Jake that the Jonas brothers were staying home with me and they would be ready to rock when he got home from school - but I guess he was practicing at school during the lessons and disrupting everyone else....ROFL
The doctor didn't even budge - I am sure that she is used to dealing with kids who have all sorts of issues - so the drumming was nothing. She did tell him a couple of times to stop playing the table or to come sit down so they could finish.......it wore me out!!! LOL. We have another day of testing on Thursday and then we will know her findings.
One positive thing already is that she said from her testing today - his IQ is definitely higher than what the school had classified him. She also said that Jake will need more modifications because he can not stay focused - he is too busy and too distracted.....so, we'll see. Karen B - I may be calling to get your advice regarding the final findings too.......your knowledge will be so helpful to me going into next year. Thanks for being willing to help me.....I love you!
I think in one of my postings a while back I told you guys that I was being considered for the NICU Family Advisory Council at Texas Children's Hospital and I just found out that I was accepted!!! I'm so excited........this will mean that I will help them work on initiatives for parents who have children in the NICU - ways to help them cope, services that TCH needs/wants to provide for them - etc. Orientation is June 25th and then I start on the board in September. I'm excited about the opportunities that this will afford me.........
My scripture reading today was Proverbs 16 and it talked about how we can make plans in our head - but God is the only one who can/will cause things to happen. I know this was in his plan for me and I'm looking forward to walking this path.
love to all
k
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From an ADD Mom, *your post made me laugh*. Oh, I wasn't laughing necessarily when it was my turn. Redonia didn't take her band but she was always a teacher. She would literally line the kids up against a wall while they should have been in their desks. If that didn't work she'd line up crayons on her desk and pretend they were her students. Ritalin was a lifesaver! lol Of course, we've had adarall and concerta, too. I'm always amazed that these kids have such high IQ's. They can be so disruptive yet hear everything that is taught. Unfortunately it hinders the rest of the class. I think Redonia would be someone great to pair with Jake as he gets older. She definitely could help him put in place some coping skills. Give him hugs!
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